info@orofacialpain.org.uk

Links

Here is a list of useful information that provides some background to Orofacial pain. There is already a lot of information about pain available but this is the first site to link some excellent available resources for example the patient facing sites Trigeminal neuralgia association (TNA), the organisation for understanding cluster headache (OUCH ) who are already providing excellent information for specific and rare conditions causing severe facial pain.

The OFP website aims to link these resources and provide information on the more common orofacial pain conditions causing misery to many patients.

General links to other pain websites

Dental pain

Post surgical wisdom tooth pain

Jaw joint pain

Oral discomfort

Burning mouth syndrome

Post surgical nerve injury

Trigeminal neuralgia

Trigeminal autonomic cephalgias

Headaches

Orofacial pain

Treatment 

Treatment – Medication

Support for chronic pain patients

  • Action on Pain  www.action-on-pain.co.uk PO Box 134, Shipdham, Norfolk, IP25 7XA Tel: (Painline) 0845 603 1593. Action on Pain is a national charity, run by volunteers, the majority of whom have chronic pain, which provides support and information for people affected by chronic pain, either as a sufferer or a carer/relative. They are a strong lobbying organisation working hard to increase the provision of effective pain management services within the NHS and are an independent, non-political organisation focussed clearly on the key issues around pain management. They  promote the positive side of effective pain management whenever possible in order to improve the quality of life for people in chronic pain. As well as the Painline they have a mobile information unit and an effective range of informative publications.
  • Pain concern www.painconcern.org.uk  Unit 1-3, 62-66, Newcraighall Road, Fort Kinnaird, Edinburgh, EH15 3HS Tel: (Helpline) 0300 123 0789 (10 am-4 pm, Monday-Friday), (Admin) 0131 669 5951
  • Information and support for pain sufferers, those who care for them and about them.
  • Free factsheet and leaflets to help you manage your pain.
  • Quarterly magazine.
  • Listening-ear helpline – the chance to talk to another pain sufferer (see Contact Us).
  • Online forum.
  • An internet radio programme, Airing Pain, which includes Q and A sessions and interviews with patients and professionals
  • Pain UK https://painuk.org/about/ Pain UK is an alliance of charities providing a voice for people in pain. We were founded in November 2011 and registered as a charity in January 2012. Since then, our membership base has grown rapidly and we now support charities dealing with all manner of painful conditions, from head to toe. Pain UK has four central objectives:
    1. To improve the efficiency and effectiveness of UK pain charities, thus helping them to improve quality of life for people in pain
    2. To secure general acceptance that pain is an issue in its own right, just as significant as the disease or injury that may be causing it
    3. To provide a signposting service for people in pain where help is available
    4. To highlight the need for support where it is needed

    To achieve our objectives, we offer training and support to the member charities, many of which are run by ‘expert patients’ and may not have access to advice on issues like lobbying, fundraising, profile raising and reaching out to young people.

Professional organisations

Diaries

Although these are labelled headache or migraine diaries all the below can be applied to your orofacial pain and are very useful in assisting with a diagnosis 

Sleep Centre

Dr Alex Nesbitt Neurologist/ Sleep Medicine Specialist
http://www.sleepcity.institute/about/alexander-nesbitt.html

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