Links
Here is a list of useful information that provides some background to Orofacial pain. There is already a lot of information about pain available but this is the first site to link some excellent available resources for example the patient facing sites Trigeminal neuralgia association (TNA), the organisation for understanding cluster headache (OUCH ) who are already providing excellent information for specific and rare conditions causing severe facial pain.
The OFP website aims to link these resources and provide information on the more common orofacial pain conditions causing misery to many patients.
General links to other pain websites
Dental pain
- Patient choices toothache https://www.nhsinform.scot/illnesses-and-conditions/mouth/toothache/
- https://patient.info/oral-dental-care/toothache
Post surgical wisdom tooth pain
Jaw joint pain
- FDS RCS Guidelines for temporomandibular disorders https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults.pdf
- Management of painful Temporomandibular disorder in adults NHS England Getting It Right First Time (GIRFT) and Royal College of Surgeons’ Faculty of Dental Surgery by E Beecroft, J Palmer, C Penlington https://www.rcseng.ac.uk/dental-faculties/fds/publications-guidelines/clinical-guidelines/
Oral discomfort
Burning mouth syndrome
Post surgical nerve injury
- Trigeminal nerve foundation website http://www.trigeminalnerve.org.uk (sister site)
Trigeminal neuralgia
- Trigeminal neuralgia association (TNA) http://www.tna.org.uk
- FDS RCS guidelines for management of patients with Trigeminal Neuralgia https://www.rcseng.ac.uk/-/media/Files/RCS/FDS/Guidelines/Trigemina-Neuralgia-Guidelines_2021_V4.pdf
Trigeminal autonomic cephalgias
- Ouch https://ouchuk.org/
Headaches
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- Migraine trust http://www.migrainetrust.org/
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Orofacial pain
- International Classification of Orofacial Pain, 1st edition (ICOP) First Published January 30, 2020 Research Article - https://www.researchgate.net/publication/366199965_International_Classification_of_Orofacial_Pain_1st_edition_ICOP
- International Classification of Orofacial Pain, 1st edition (ICOP) First Published January 30, https://ichd-3.org/13-painful-cranial-neuropathies-and-other-facial-pains/13-12-central-neuropathic-pain/
Treatment
- Self help guide for chronic pain sufferers http://www.moodjuice.scot.nhs.uk/chronicpain.asp
Treatment – Medication
- Amitriptyline https://patient.info/medicine/amitriptyline-elavil
- Nortriptyline https://patient.info/medicine/nortriptyline-tablets
- Pregabalin https://patient.info/medicine/pregabalin-alzain-axalid-lyrica
- Gabapentin https://patient.info/medicine/gabapentin-neurontin
- Carbamazepine https://patient.info/medicine/carbamazepine-for-epilepsy-curatil-tegretol
- Oxcarbazepine https://patient.info/medicine/oxcarbazepine-for-epilepsy-trileptal
- Lamotrigine https://patient.info/medicine/lamotrigine-for-epilepsy-lamictal
- Topiramate https://patient.info/medicine/topiramate-to-prevent-migraine-topamax
- Venlafaxine https://patient.info/forums/discuss/browse/venlafaxine-3285
- Duloxetine https://patient.info/medicine/duloxetine-for-urinary-symptoms-yentreve
- Baclofen https://patient.info/medicine/baclofen-for-chronic-muscle-spasm-lyflex-lioresal
Support for chronic pain patients
- Action on Pain www.action-on-pain.co.uk PO Box 134, Shipdham, Norfolk, IP25 7XA Tel: (Painline) 0845 603 1593. Action on Pain is a national charity, run by volunteers, the majority of whom have chronic pain, which provides support and information for people affected by chronic pain, either as a sufferer or a carer/relative. They are a strong lobbying organisation working hard to increase the provision of effective pain management services within the NHS and are an independent, non-political organisation focussed clearly on the key issues around pain management. They promote the positive side of effective pain management whenever possible in order to improve the quality of life for people in chronic pain. As well as the Painline they have a mobile information unit and an effective range of informative publications.
- Pain concern www.painconcern.org.uk Unit 1-3, 62-66, Newcraighall Road, Fort Kinnaird, Edinburgh, EH15 3HS Tel: (Helpline) 0300 123 0789 (10 am-4 pm, Monday-Friday), (Admin) 0131 669 5951
- Information and support for pain sufferers, those who care for them and about them.
- Free factsheet and leaflets to help you manage your pain.
- Quarterly magazine.
- Listening-ear helpline – the chance to talk to another pain sufferer (see Contact Us).
- Online forum.
- An internet radio programme, Airing Pain, which includes Q and A sessions and interviews with patients and professionals
Professional organisations
- International Headache society (HIS) http://www.ihs-headache.org/
- British pain society(BPS) http://www.britishpainsociety.org/
- International association for the Study of Pain (IASP) http://www.iasp-pain.org/
- Grunenthal change pain site for professional and patients http://www.change-pain.co.uk/
- American academy of orofacial pain (AAOP) http://www.aaop.org/
- British Association of Oral Surgeons (BAOS) https://www.baos.org.uk
- Temporomandibular Joint Association: http://www.tmj.org
- Royal College of Anaesthetists Faculty of Pain: https://www.rcoa.ac.uk/faculty-of-pain-medicine/
- British dental association
- International association of oral and maxillofacial surgery: http://www.iaoms.org/
- British dental journal: http://www.nature.com/bdj/index.html
- Dental update: http://www.dental-update.co.uk/
Diaries
Although these are labelled headache or migraine diaries all the below can be applied to your orofacial pain and are very useful in assisting with a diagnosis
- Monthly headache diary
https://www.stgeorges.nhs.uk/wp-content/uploads/2014/11/SGH-Monthly-Headache-Diary.pdf - https://www.nationalmigrainecentre.org.uk/wp-content/uploads/2023/01/Headache-diary_DIGITAL.pdf
- https://www.news-medical.net/health/Using-a-Pain-Diary.aspx
- https://www.stgeorges.nhs.uk/wp-content/uploads/2014/11/SGH-Monthly-Headache-Diary.pdf
Sleep Centre
Dr Alex Nesbitt Neurologist/ Sleep Medicine Specialist
http://www.sleepcity.institute/about/alexander-nesbitt.html
